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User Reviews & Ratings - Rapamune oral


Read user comments about the side effects, benefits, and effectiveness of Rapamune oral.

Overall User Ratings

36 Total User Reviews

User Reviews

1-5 of 23 Next»
Condition: Prevent Kidney Transplant Rejection
11/15/2018 4:22:02 AM

Reviewer: John Alfonso, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
I had my kidney transplant 6 mo ago. I'm on 1 mg/day of Rapamune and 4 mg/day of Prograf. My creatinine is 0.7. I do not have any side effects with this generic Rapamune from bonhoa.com. The brand one is too much expensive for my family. Thanks the generic one from India.

Condition: Prevent Kidney Transplant Rejection
8/22/2014 6:36:36 PM

Reviewer: NJ, 55-64 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 1

Satisfaction

Current Rating: 1

Comment:
Having to mix it with juice was very inconvenient and it sent my cholesterol to over 600!

Condition: Prevent Kidney Transplant Rejection
6/2/2013 12:31:36 PM

Reviewer: 45-54 Female (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
Rapamune is very dangerous especially for liver patients. if you dont believe me ask your doctor. This drug can and will kill you. I am kidney transplant patient 19 years. The Rapamune which I was on caused VENO OCCLUSIVE DISEASE and PORTAL HYPERTENSION, tiny veins in the liver are blocked causing ascites. I need paracentesis weekly to remove fluid from my abdomen, 2.5 to 2.8L every procedure. No ... Show Full Comment

Condition: Prevent Kidney Transplant Rejection
2/20/2013 8:48:46 PM

Reviewer: 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hopin ... Show Full Comment

Condition: Prevent Kidney Transplant Rejection
7/23/2012 6:40:45 AM

Reviewer: Junbug, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neu ... Show Full Comment

1-5 of 23 Next»

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